At Global MPN Scientific Foundation, we value the insights and experiences of those living with Myeloproliferative Neoplasms (MPNs). That's why we’re doing a Quality of Life Survey, aimed at gathering essential information about the daily lives of MPN patients.
By participating, you’ll help us better understand the challenges faced by individuals affected by MPN and the impact it has on their overall well-being and emotional health.
Content guide
Survey Goals
The anonymous data collected will be invaluable in shaping strategies to address the needs of the MPN community. Key topics include:
Quality of Life & Symptoms: Understanding how MPN symptoms affect daily living.
Mental Health & Well-being: Evaluating the emotional toll of living with MPN and the psychological support received.
Healthcare & Treatments: Gathering insights on treatment effectiveness and healthcare experiences.
Daily Life Impact: Analyzing how MPN influences daily activities and social life.
Your Voice Matters
Participating in this survey is a crucial step in advocating for better patient resources and care. By sharing your experiences, you’ll help improve the lives of those affected by MPN. We appreciate everyone who takes the time to complete the survey. Together, we can create a more informed and supportive community.
Join the MPN World Community
We also invite you to connect with other patients on MPN World, a free and secure platform to share experiences and access valuable resources. Let’s work together for better care and a brighter future for MPN patients.
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