Rare Disease Day, observed annually on the last day of February, is a global initiative to raise awareness about rare conditions like Myeloproliferative Neoplasms (MPNs). This year, Global MPN Scientific Foundation is bringing you a special webinar featuring Dr. Rafael Marcos-Gragera, an expert in epidemiology, to discuss the incidence of MPNs and what the latest data reveals about these rare blood disorders.
Content guide
Shedding Light on MPN Incidence
MPNs are classified as rare hematologic malignancies, yet their impact on patients is profound. According to available data from RARECAREnet and epidemiological studies, the estimated incidence of MPNs is approximately 2.17 cases per 100,000 individuals per year. However, true incidence rates may be underreported due to misdiagnosis or lack of standardized tracking methods in some regions, as highlighted in various epidemiological studies, including reports from RARECAREnet and population-based cancer registries.
During this webinar, Dr. Marcos-Gragera will provide valuable insights into how MPN cases are recorded, regional variations, and what trends researchers are observing.
Why Rare Disease Day Matters for MPN Patients
For individuals living with MPNs, Rare Disease Day is an opportunity to amplify their voices and advocate for better recognition, research, and treatment options. Understanding the epidemiology of MPNs can help improve patient care, guide healthcare policies, and enhance early detection efforts. This webinar will offer a comprehensive look at MPN incidence and why raising awareness is crucial for both patients and medical professionals.
Join the Conversation
We invite you to be part of this informative session and gain a deeper understanding of MPNs from a global perspective. As a member of the MPN World community, you will have access to exclusive content, including video recordings of all our events, patient stories, and expert discussions.
🔗 Register now and join us in recognizing Rare Disease Day with meaningful discussions that push MPN awareness forward!
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